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If you don’t and you are either a fan of the website or someone with chronic illness/pain yourself— check it out.

We have an awesome community of patients, patient advocates, and caregivers sharing small victories, laughs, tips, advice, resources/news, upcoming events, engaging in discussion and QOTD’s, motivation, giveaways, inspiration for those bad days, and a place to vent with those who understand.

Come join us here!

Today’s QOTD:  Sometimes the little things are the most meaningful. What makes you feel refreshed when you are in a depressed funk from your disease? What made you smile today?Today I stepped outside to absolutely perfect 55 degree weather and sunshine, and it was exactly what I needed to get my day going and put a smile on my face.

What about you? Come share and read what others are saying on the page.

Two Words: Kineret Sucked.

I was so hopeful this injection wouldn’t be painful like Enbrel was. I was so hopeful.

And was totally let down.

It takes a lot of pain to put me in tears, but that did it.

I don’t understand why I have such terrible reactions to preservatives in these biologics. I know it’s not uncommon either. There is no way I can do that injection every. single. day. if it remains that painful.

Going to try again tomorrow and hope that it is less painful. Fingers crossed.

First Kineret Injection Tonight!

Couldn’t come at a better time— the past four days have been pretty bad. I can feel the shift in my sleep pattern when my flare worsens because for a week I go from not sleeping to sleeping 9 hours at night and napping throughout the day. 

I slept most of the weekend away and can feel it in my body today.

I’m nervous that Kineret injections will hurt as horribly as Enbrel, but I have only heard the opposite so fingers crossed. On that note, I will be vlogging the kineret injection & will update later on how it goes.

Wish me luck & spoons— I could use them ;)

Has anyone else done Kineret injections? Were they painful? What was your experience?

Chronic Illness Problems 01/13/2013

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  • Have Autoimmune Arthritis that affects the hands.
  • Have an IV placed or blood drawn
  • Told to squeeze the stress ball nurse gives you. 
  • Told to squeeze harder
  • Can’t squeeze it hard enough— too much pain/weakness!

Anyone else have this issue?

Simple Tasks Campaign by The American College of Rheumatology strives to “elevate the importance of rheumatology, increase understanding of the work of rheumatologists, and lay a foundation of awareness and understanding that creates support for more favorable public policy.”Visit www.simpletasks.org to share your story, get involved, or get your own rheumatologist involved.Together, we can make a difference for patients and their loved ones.
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Simple Tasks Campaign by The American College of Rheumatology strives to “elevate the importance of rheumatology, increase understanding of the work of rheumatologists, and lay a foundation of awareness and understanding that creates support for more favorable public policy.”

Visit www.simpletasks.org to share your story, get involved, or get your own rheumatologist involved.

Together, we can make a difference for patients and their loved ones.