Live World Autoimmune Arthritis Day Chat in 30 Minutes!
The chat has been moved to the WAAD Facebook Page and will go up at 10am EST, as the live site has crashed! Come chat with me about all things self love and self esteem.
Come chat with me TOMORROW at 10am EST about self Esteem and Autoimmune Arthritis. Whether you have Lupus or IBD-related arthritis, let’s talk all things self love, self care, self esteem with disease, disability, scars, prednisone side effects, etc.
Come connect with other patients, share resources, ideas, and chat about a sensitive topic in a safe space!
World Autoimmune Arthritis Day 2013: Free Registration! Spread Awareness and Participate from Home!
It’s time! The second annual World Autoimmune Arthritis Day (WAAD) will be held on May 20th, 2013!
Hosted by the International Autoimmune Arthritis Movement, this year is going to be bigger and better than before— 3x the size of the 2012 event! Join those of us at IAAM and WAAD to shine a light on Autoimmune Arthritis!
What is WAAD?
- WAAD is a 47-hour, global time zone, virtual awareness convention where patients, patient experts, health care professionals, nonprofit organizations, loved ones, and supporters to come together to spread awareness and education of Autoimmune Arthritis.
How do I get involved?
On the day of the event, log on and explore!
- Live Chats held by ePatient experts-- watch and participate in live chats on a variety of topics. Yours truly will be hosting a presentation and live chat on self esteem/self love, so make sure you stop by and chat with me!
- Presentations by patient experts on a variety of topics, all dedicated to aiding the Autoimmune Arthritis patient.
- Vendor booths
- Resource Library with hundreds of patient resources and a blog list for Autoimmune Arthritis patients and their loved ones
- Ask the Experts Panel-- connect with health care professionals and submit your questions
- Patient Nominated Best of the Best Rheumatologists— a list compiled by patients of the best rheumatologists. Looking for a new rheumy? Stop by and check out the list. Nominate YOUR rheumatologist here!
- 36 nonprofit organizations will be holding booths from all over the world, from South Africa to New Zealand!
- The Lounge— an open chat to connect with other WAAD attendees and Autoimmune Arthritis patients.
- Check out the WAAD Android Apple app: A Day in the Life With Autoimmune Arthritis (!)
- Enter the WAAD2013 Raffle and much more
What is Autoimmune Arthritis?
- Autoimmune Arthritis encompasses: Rheumatoid Arthritis, Juvenile (autoimmune) Arthritis (JIA/JRA), Still’s Disease, Mixed Connective Tissue Disease, Undifferentiated Connective Tissue Disease, Lupus, Ankylosing Spondylitis, Psoriatic Arthritis, Sjogren’s Syndrome, and more.
- Read more about types of Autoimmune Arthritis and other related conditions (e.g., Vasculitis, Inflammatory Bowel Disease).
How do I sign up?
- Easy! Registration is completely free. Submit your name, email, and a few pieces of relevant information here.
We want to see YOU there! Reblog, retweet, follow along on Twitter, and spread the word! Will you be attending WAAD 2013?
Congrats to Lene Andersen (The Seated View) on her New Book: Your Life with Rheumatoid Arthritis
A huge congrats to Lene Andersen of The Seated View on her new book,Your Life With Rheumatoid Arthritis!
If you are not already familiar with Lene, her excellent blog, and contributions to our Autoimmune Arthritis and disability communities, please go check out her work. She is a lead writer at MyRACentral.com, and a director of community outreach at of Show Us Your Hands: An Inflammatory Arthritis Project.
Your Life with Rheumatoid Arthritis is about making that life easier:
Because having RA is about so much more than a physical disease[…] When you have RA, your whole life has RA […]
What if there was a book that talked about all the things involved in your life with RA and helped make them easier? What if there was a sort of guide book to living well with this disease? And what if it wasn’t just for those who are new to RA, but also a resource for people who have lived with it for years?
For more information about Your Life with Rheumatoid Arthritis, Lene Andersen, and where you can purchase this book:
I will be purchasing and reviewing Lene’s book shortly, but I urge anyone with Rheumatoid, Autoimmune, or Inflammatory Arthritis to go check out her work and her book.
Another great resources for Autoimmune Arthritis patients!
Rheumatoid Disease: “Anybody Can Have Arthritis”
Check out this sneak peek from the Rheumatoid Awareness Day Video!
I asked Florida State University students four questions:
- What do you think of you hear “Rheumatoid Arthritis?”
- Would it surprise you to know patients often use low-dose chemotherapeutic medications?
- Would it surprise you to know that Rheumatoid Arthritis has nothing to do with old age?
- Would is surprise you to know that Rheumatoid Arthritis involves the organs and muscles, not just joints?
Learn more about how you can participate here:
www.chroniccurve.com/rheumawarenessday
www.rheum4us.org
Chronic Illness Curating: Don’t Post Links; Send Them!
If you’d like me to check out, comment on, share, review, or read your blog/blog post, please send me the link in a message. I try to keep the facebook page free of blog articles that I haven’t read first. Why? So that no offensive, inappropriate, or downright outrageous content is hanging out. That’s a priority for me— keeping the facebook page judgment free.
In the past, I’ve had people post their blog articles about how narcotic medications mean inevitable addiction. So many people were offended by this and the user was banned: who posts that on a page full of users who have no choice but to use medication for pain relief?
Recently, someone posted a link about healing well with chronic illness. While the concept of the article was really great, ultimately most of us are not “healing” so much as we are enduring, surviving. We are not necessarily spiritually broken, either, so much as we are transitioning into a different phase of life. The post fell flat on substance. It was posted without so much as a comment— shameless self promotion. It was not appreciated.
So if someone is asking for advice, feel free to post your blog if you think it’s relevant. But if there is no prompting, just send it to me. I’d be happy to share your post, I just want to read it first! Otherwise it will be deleted until I read it.
It’s also important that we share links appropriately. You don’t use a community facebook page for shameless self promotion— that is not the purpose of Chronic Curve— that is what your own twitter and blog are for! Encourage discussion and community not promo’s.
Curating is important. So if you want me to share something, read something, give you feedback, give me feedback, anything— please just send it to me in a message.
Thanks, love, & spoons,
Emily
Page 1 of 9
A 21 year old student and ePatient advocate working to help others navigate through life with chronic pain, chronic disease, and disability. Sharing resources, advice, helping others find a voice and become empowered patient advocates. Raising awareness for Autoimmune Arthritis and Autoinflamatory diseases.
