NIH, please pick up the phone
So far I have called six different people at the NIH trying to find out where my rheumatologists should send their patient referrals and to gather information about the process.
Not once have I been able to get a person on the phone and not a single person has called me back in over a week, including the patient representation— the “connection” between the hospital and the patient.
I am so so so frustrated. Why is this so difficult!?