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What Are Your Nails Telling Your Rheumatologist or Gastroenterologist?

Got a great question from Not That Kind of Chronic (whose sense of humor in blog naming I quite enjoy)

Your recent post mentioned not to wear nail polish to a rheumatologist. I always have a manicure. Can you tell me what my nails might show?

The first time you see one, yes. It’s not absolutely necessary to remove your polish, but the condition of your nails can tell your rheumatologist about the state of your health, and many doctors will examine both your fingernails and toenails. 

I, like many other rheum ladies, pretty much always have a manicure. I don’t take off my polish unless I notice there is a new nail development, but I do remove it when I see a new relevant specialist for the first time.

It’s particularly important if you are seeking a diagnosis from a rheumatologist, gastroenterologist, or other specialist for a systemic disease!

Here’s why:

  1. Nail Pitting — can be indicative of psoriasis (important for patients with Psoriatic Arthritis), Reactive Arthritis, and other connective tissue diseases 
     
  2. Spoon Nails (Koilonychia)— can be indicative of Systemic Lupus, Raynaud’s, and anemia
     
  3. Yellow Nail Syndrome — occurs in Rheumatoid Arthritis patients or often the result of infection or medications, both of which are relevant to Autoimmune Arthritis patients.
     
  4. Splinter Hemorrhages— small blood clots under the nail can indicate Systemic Lupus, Rheumatoid Arthritis, Antiphospholipid Syndrome, Psoriasis, Vasculitis, and Scleroderma (all rheumatology-related).
     
  5. Nail Clubbing— can occur with Inflammatory Bowel Disease (e.g., Crohn’s, Ulcerative Colitis), liver disease, and pulmonary diseases.
     
  6. Both Discoid and Systemic Lupus can cause nail changes such as cracking, curling, and even complete loss of nails.
     
  7. Rheumatoid Vasculitis or Nail Fold Vasculitis— can cause pitting, sores, redness, and infarcts of the nail-bed (not a pretty picture). 
     
  8. Nail health can also reveal possible vitamin deficiencies and malnutrition, both important when treating rheumatological diseases.

Some food for thought before your visit to a new specialist!

Just for fun, what do you use on your peeling nails? Do you keep yours painted? How do you take care of your nails? Answer below in the answer or Disqus box!

    • #Chronic illness
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    • #MCTD
    • #UCTD
    • #SLE
    • #DLE
    • #Lupus
    • #Nail health
    • #Nail polish
    • #Autoimmune
    • #Medicine
    • #Autoimmune Arthritis
    • #IBD
    • #Crohn's
    • #Ulcerative Colitis
    • #Vasculitis
    • #Psoriatic Arthritis
    • #Reactive Arthritis
    • #Raynaud's
    • #Scleroderma
    • #Anemia
    • #vitamin deficiency
    • #Undiagnosed
  • 1 month ago
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College and Chronic Illness: Finals Week/Studying Recap

Happy (?) Monday!

As I mentioned earlier, I am on a hiatus while preparing for my final exams. 

                      

A few helpful hints for the rest of my chronically ill readers embarking on their own exams:

  • College & Chronic Illness: Surviving Finals Week(s)
     
  • College & Chronic Illness: 19 Tips to Study Strong & Fight the Fog
     
  • Chronic Curve’s Study Space— for those of you who wanted to know!

If you found any of these posts helpful, remember to reblog and share with other #spoonies who might need the help. Good luck!

    • #AS
    • #Ankylosing Spondylitis
    • #Arthritis
    • #Autoimmune
    • #Autoimmune Arthritis
    • #Autoimmune disease
    • #Chronic disease
    • #Chronic illness
    • #Chronic pain
    • #College
    • #College and chronic illness
    • #DLE
    • #Disability
    • #Education
    • #Invisible illness
    • #JA
    • #JIA
    • #JRA
    • #Lupus
    • #MCTD
    • #PsA
    • #RA
    • #Rheum
    • #Rheumatoid Arthritis
    • #SLE
    • #Sjogren's
    • #Sjogren's Syndrome
    • #Still's Disease
    • #UCTD
    • #sJIA
  • 5 months ago
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Hope: The Thing With Feathers

Hope is the thing with feathers 
That perches in the soul, 
And sings the tune without the words, 
And never stops at all,

And sweetest in the gale is heard; 
And sore must be the storm 
That could abash the little bird 
That kept so many warm.

I’ve heard it in the chillest land, 
And on the strangest sea; 
Yet, never, in extremity, 
It asked a crumb of me.
—Emily Dickinson

I was talking to my mum tonight. She remarked that I will reach remission, it’s only a matter of time and finding the right drug, that I have to have hope.

I do have hope. Lots of it, in fact.

But one thing I stopped doing a while ago was putting all of my hope into my mission to remission.

Because remission does not mean no disease or symptoms.

Remission is not overwhelmingly common.

My hope goes into little things: I hope for a good day tomorrow. I hope to one day run on the beach again:

or travel the way I want to. I hope to one day live a life where pain does not dictate my choices and doctor appointments don’t dictate my holiday break schedules.

Whether or not remission is a part of that hope is not my first concern.

If I put all my hope into one basket, so to speak, what will I end up with if I never reach remission?

She didn’t quite understand how that wasn’t negative thinking. It’s not negative— it’s reality. It’s life. It’s life with incurable disease(s) and a genetic mutation this rare. It’s my life.Perhaps it’s not possible for someone who doesn’t suffer the way we do to understand this thought process. It must be near impossible to understand the way we have to adapt to the lives we lead.

Because that’s just it: we adapt. You get to a point where there is no more room for denial. This is what it is, and you can choose to love and live coexisting with your disease, or you can search for remission and never get there while forgetting about the journey along the way. Most of us put more energy into living than sitting on the sidelines hoping, even if it takes us some time to come to terms with our new existence.

It does not mean that we lose hope—quite the opposite—but hope does change; it adapts as we do.

So do I have hope that one day I will reach remission? Definitely! It is absolutely possible and I hope that it will one day be my reality.

But I hope more for tomorrow. I don’t chase the pot of gold at the end of the rainbow or seek the destination; I just hope for an easier journey with lots of roses to stop and smell along the way.


And that hope, right now, is enough for me. 

    • #Arthritis
    • #Autoimmune
    • #Autoimmune Arthritis
    • #Autoimmune disease
    • #Chronic disease
    • #Chronic illness
    • #Chronic pain
    • #DLE
    • #Disability
    • #Disease
    • #EDS
    • #FMF
    • #FMS
    • #Fibro
    • #Fibromyalgia
    • #Invisible illness
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    • #MS
    • #Multiple Sclerosis
    • #PAPA
    • #RA
    • #Rheum
    • #Rheumatoid Arthritis
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    • #TRAPS
    • #UCTD
  • 5 months ago
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8 Hours Left: Chronic Curve Fall Favourites Giveaway!

Only 8 hours left to enter the Chronic Curve Fall Favourites Thanksgiving Giveaway!

    

What You’ll Win: A Few of my Favourite Chronic Illness Things

  1. A sample of DermaE Very Clear Skin Cleanser— the tea tree oil and willow bark cleanser that has worked wonders on my skin after being torn apart by prednisone and biologics. I swear by this brand.
     
  2. A CURE RHEUM bracelet
     
  3. Ludens Menthol-Free soothing throat lozenges; great for dry mouth, sore throats from flares, and mouth sores.
     
  4. One CVS Peas ice pack— lightweight, soft, and the best ice pack for painful, swollen joints or muscles.
     
  5. How to Be Sick by Toni Bernhard. The best guide to life for those of us with chronic illnesses, in my humble opinion. This book truly changed my outlook and day to day life with chronic disease. If I could give a copy away to every chronically ill person I speak to, I would. Whether you have a chronic pain condition or anxiety— there is something in this book for you.


And a little something handmade from me.

How to be eligible:

  • Anyone can enter, regardless of what chronic illness you may or may not have
     
  • Tell me one thing you are grateful for this year. Can be chronic-illness related or not. You can tweet me (@chroniccurve) with the hash tag #giveaway or leave it as a facebook comment/reply to the giveaway statuses.  Please leave your full name. 

  • I will put all names into a random generator, like I always do.

  • I will be picking two winners!

Winners will be announced on November 25, 2012 and will receive a package within 10 days of that date.

*please tweet me or comment on the Fall Giveaway fb status unless you don’t have a facebook or twitter! I would prefer not to backlog my inbox with messages, but it’s not a problem if you have no other way :)



*I am not sponsored by any of the above brands nor have I been sent any of these materials. All purchases are my own and all products truly are some of my favourite chronic illness things! 

    • #Chronic Illness
    • #Chronic pain
    • #Invisible illness
    • #Disability
    • #Disease
    • #Autoimmune
    • #Autoimmune disease
    • #Lupus
    • #SLE
    • #DLE
    • #RA
    • #Rheum
    • #Rheumatoid Arthritis
    • #Autoimmune Arthritis
    • #JRA
    • #JIA
    • #JA
    • #sJIA
    • #Still's Disease
    • #Sjogren's
    • #Sjogren's Syndrome
    • #AS
    • #Ankylosing Spondylitis
    • #Lyme Disease
    • #IBD
    • #Crohn's
    • #Crohn's Disease
    • #UC
    • #Ulcerative Colitis
    • #CRPS/RSD
  • 5 months ago
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Q:is it normal for prednisone to keep skin from healing properly? it seems to be ripping my skin from all the water retention and nothing i do seems to stop it.

yami990

It is normal for me and I know of others who have the same problem, so your best bet is to see a dermatologist!! 

No matter where your skin issues are with prednisone, there are things you can do and a dermatologist is going to know best! For me it was antibiotics and a few creams— my skin is like new and now Prednisone no longer breaks me out in any way.

I highly recommend DermaE’s Tea Tree & Willow Bark cleanser and Lubriderm’s daily moisturizer for normal to dry skin (no perfumes, dyes, perfect for sensitive skin) if you’re looking to try something new without seeing a physician. CeraVe and Epicuren are also great brands (recommended to me by my dermatologist) for SPF and daily moisturizer, but both are more expensive than Lubriderm. 


Let me know how it goes and if you have any more questions, don’t hesitate to ask. If you are in south Florida and want a referral to an AWESOME dermatologist, let me know and I will send you some info in a private message.

    • #Ask
    • #Prednisone
    • #Chronic illness
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    • #Autoimmune
    • #Autoimmune disease
    • #Autoimmune Arthritis
    • #RA
    • #Rheum
    • #Rheumatoid Arthritis
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    • #Dermatology
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    • #Sjogren's
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    • #TRAPS
    • #FMF
  • 6 months ago
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Fall Favourites Thanksgiving Giveaway!

What You’ll Win: A Few of my Favourite Chronic Illness Things

  1. A sample of DermaE Very Clear Skin Cleanser— the tea tree oil and willow bark cleanser that has worked wonders on my skin after being torn apart by prednisone and biologics.
     
  2. A CURE RHEUM bracelet
     
  3. Ludens Menthol-Free soothing throat lozenges; great for dry mouth, sore throats from flares, and even with sores.
     
  4. One CVS Peas ice pack
     
  5. How to Be Sick by Toni Bernhard. The best guide to life for those of us with chronic illnesses, in my humble opinion.


And a little something handmade from me.

How to be eligible:

  • Tell me one thing you are grateful for this year. Can be chronic-illness related or not. You can tweet me (@chroniccurve) with the hash tag #giveaway or leave it as a facebook comment/reply to the giveaway status  Please leave your full name. 

  • I will put all names into a random generator, like I always do.

  • I will be picking two winners!

Winners will be announced on November 25, 2012 and will receive a package within 10 days of that date.

*please tweet me or comment on the Fall Giveaway fb status unless you don’t have a facebook or twitter! I would prefer not to backlog my inbox with messages, but it’s not a problem if you have no other way :)

                               

    • #Giveaway
    • #Chronic illness
    • #Chronic pain
    • #Invisible illness
    • #Disability
    • #RA
    • #Rheum
    • #Rheumatoid Arthritis
    • #JRA
    • #JIA
    • #Still's Disease
    • #SLE
    • #MCTD
    • #UCTD
    • #Lupus
    • #DLE
    • #FMS
    • #Fibro
    • #Fibromyalgia
    • #TRAPS
    • #FMF
    • #CFS/ME
    • #ME
    • #Autoimmune
    • #Autoimmune disease
    • #Autoinflammatory
    • #Autoimmune Arthritis
    • #Mito
    • #Endo
    • #Endometriosis
  • 6 months ago
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Avatar A 21 year old student and ePatient advocate working to help others navigate through life with chronic pain, chronic disease, and disability. Sharing resources, advice, helping others find a voice and become empowered patient advocates. Raising awareness for Autoimmune Arthritis and Autoinflamatory diseases.

Read more about Chronic Curve here.

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