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Chronic Illness Problems 01/13/2013

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  • Have Autoimmune Arthritis that affects the hands.
  • Have an IV placed or blood drawn
  • Told to squeeze the stress ball nurse gives you. 
  • Told to squeeze harder
  • Can’t squeeze it hard enough— too much pain/weakness!

Anyone else have this issue?

    • #Chronic illness problems
    • #Chronic illness
    • #Chronic pain
    • #Autoimmune
    • #Rheumatoid Arthritis
    • #RA
    • #JRA
    • #JIA
    • #JA
    • #sJIA
    • #soJIA
    • #Still's Disease
    • #Autoimmune Arthritis
    • #Lupus
    • #SLE
    • #MCTD
    • #UCTD
    • #Ankylosing Spondylitis
    • #EDS
    • #Fibro
    • #Fibromyalgia
    • #FMS
    • #Sjogren's
  • 4 months ago
  • 21
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Chronic Illness Problems 12/17/2012

     image

  • Seeing more specialists in two weeks than most people see in their entire lives. Neurologists, dermatologists, optometrists, rheumatologists, spinal orthopedists, gastroenterologists, endocrinologists, the list goes onnnn and on. 

Anyone else trying to squeeze appointments in before the new year?

    • #Chronic Illness Problems
    • #Chronic illness
    • #Chronic pain
    • #Invisible illness
    • #Autoimmune
    • #autoimmune disease
    • #Autoimmune Arthritis
    • #Rheumatoid Arthritis
    • #RA
    • #JRA
    • #JIA
    • #Still's Disease
    • #JA
    • #Lupus
    • #SLE
    • #CRPS/RSD
    • #FMS
    • #Fibro
    • #Fibromyalgia
    • #EDS
    • #IBD
    • #Crohn's
    • #FMF
    • #TRAPS
    • #PCOS
    • #Uveitis
    • #Chronic migraine
    • #cushing's
    • #AS
    • #Ankylosing spondylitis
  • 5 months ago
  • 25
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Chronic Illness Problems: 12/09/2012

     

  • Running your hand through your hair only to have it fall out in your hand.
    • #Chronic illness
    • #Invisible illness
    • #Chronic illness problems
    • #Queue
    • #Hair loss
    • #Lupus
    • #SLE
    • #RA
    • #Rheum
    • #Rheumatoid Arthritis
    • #Autoimmune
    • #Autoimmune arthritis
    • #MCTD
    • #UCTD
    • #Sjogren's
    • #Lazy tagging day
    • #Autoimmune disease
    • #Still's Disease
    • #AOSD
    • #sJIA
    • #FMS
    • #FMF
    • #TRAPS
    • #Fibro
    • #Fibromyalgia
    • #Mito
  • 5 months ago
  • 40
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Chronic Illness Problems 11/04/2012

      
  • Maintaining a healthy diet despite prednisone cravings, yet still going up a jean size after four weeks of steroids.

    • #I know it's temporary but it still sucks
    • #Chronic illness
    • #Chronic illness problems
    • #Chronic pain
    • #Prednisone
    • #Steroids
    • #Invisible illness
    • #RA
    • #Rheum
    • #JRA
    • #JIA
    • #Still's Disease
    • #Rheumatoid Arthritis
    • #Autoimmune
    • #Autoimmune disease
    • #Autoimmune Arthritis
    • #IBD
    • #Lupus
    • #SLE
    • #Sjogren's Syndrome
    • #AS
    • #MCTD
    • #UCTD
  • 6 months ago
  • 5
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Chronic Illness Problems 10/20/2012

     
  1. Buying multiple heating pads for different areas of your body

  2. Having to rest after taking a shower

Obligatory gif that represents my (our?) current existence:

image

    • #Autoimmune
    • #Autoimmune Arthritis
    • #Autoimmune disease
    • #CFS/ME
    • #CRPS/RSD
    • #Chronic illness
    • #Chronic illness problems
    • #Chronic pain
    • #Disability
    • #Endo
    • #Endometriosis
    • #FMS
    • #Fibro
    • #Fibromyalgia
    • #Heating pads
    • #Invisible illness
    • #JIA
    • #Lupus
    • #MCTD
    • #PCOS
    • #RA
    • #RSD
    • #Rheum
    • #Rheumatoid Arthritis
    • #SLE
    • #Showering
    • #Sjogren's
    • #Sjogren's Syndrome
    • #Still's Disease
    • #UCTD
  • 7 months ago
  • 36
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Chronic Illness Problems 09/12/2012

       
  • Having four ice packs and a heating pad on you at one time.
     
  • Keeping your air conditioning at 73 degrees and having a fan pointed directly at you on high while you sleep…yet still waking up having soaked your sheets from fever and sweats.

  • Never knowing when to go to the hospital or urgent care because otherwise “scary” symptoms no longer scare you

Edit: this is why I love you people. In agony over here, moaning in pain, feeling alone, and my dash blows up with people feeling the same way, sending messages of support & reblogging within a few minutes of me posting this. Thank you for letting me know I’m not alone.

    • #Chronic illness
    • #Chronic pain
    • #Invisible illness
    • #Chronic illness problems
    • #Rheumatoid Arthritis
    • #RA
    • #JRA
    • #JIA
    • #Still's Disease
    • #SLE
    • #Lupus
    • #Fibro
    • #FMS
    • #Fibromyalgia
    • #MCTD
    • #UCTD
    • #Sjogren's Syndrome
    • #Rheum
    • #TRAPS
    • #FMF
    • #Endo
  • 8 months ago
  • 47
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Avatar A 21 year old student and ePatient advocate working to help others navigate through life with chronic pain, chronic disease, and disability. Sharing resources, advice, helping others find a voice and become empowered patient advocates. Raising awareness for Autoimmune Arthritis and Autoinflamatory diseases.

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