• Archive
  • RSS
  • Ask
banner

Eye See…or Not.

So last month, remember when I mentioned my eyesight slowly worsening?

I finally got around to (read: stopped putting off. I’ve had two throacotomies and yet somehow am a big baby when it comes to having my eyes messed with) seeing the eye doctor this past Friday. But not really, because I actually walked out of the office after waiting for an hour in a waiting room with over 17 patients and a lovely smell of overly-used public restroom that was making my sister and I gag. The receptionist also decided to peace out before 5pm and I left without notifying anyone.

So in short, West Boca Eye Institute will no longer be my clinic of choice and my next appointment is on June 3rd at a new, presumably better place. 

Which is good because on Saturday night, for the first time, I was unable to drive myself to my destination because my sight was so poor and the lights were too bright.

I got half way to the local Barnes and Noble, flipped out in a mall parking lot, made it home, collapsed into a puddle of rage-filled tears, and officially can no longer drive at night.

I can deal with pain, needles every day, medications that make my face look like that of a chipmunk. I can even deal with the 4am prednisone cravings for brownies and my skin looking perpetually sunburnt,

but I cannot deal with autoimmune in my eyes or losing the independence of driving at night.

On that note, please keep your fingers crossed that whatever is going on with my vision is not uveitis or brain-related, and can be easily resolved with contact lenses.

Do any of you deal with blurry vision or related symptoms with your autoimmune or autoinflammatory diseases?

    • #Personal
    • #Chronic illness
    • #Chronic pain
    • #Uveitis
    • #Autoimmune
    • #Autoinflammatory
    • #Retinal migraines
    • #Chronic migraine
    • #RA
    • #JRA
    • #JIA
    • #Still's Disease
    • #Rheumatoid Arthritis
    • #SLE
    • #Lupus
    • #MCTD
    • #UCTD
    • #Eye sight
    • #Blurry vision
  • 2 days ago
  • 23
  • Comments
  • Permalink
Share

Short URL

TwitterFacebookPinterestGoogle+

Live World Autoimmune Arthritis Day Chat in 30 Minutes!

The chat has been moved to the WAAD Facebook Page and will go up at 10am EST, as the live site has crashed! Come chat with me about all things self love and self esteem.

    • #Chronic illness
    • #Chronic pain
    • #Self esteem
    • #Self love
    • #Autoimmune
    • #Arthritis
    • #RA
    • #JRA
    • #JIA
    • #JA
    • #Still's Disease
    • #MCTD
    • #UCTD
    • #Lupus
    • #SLE
    • #Rheumatoid Arthritis
    • #Reactive Arthritis
    • #Psoriatic arthritis
    • #Sjogren's Syndrome
    • #WAAD
    • #Live chat
    • #Advocacy event
    • #Rheumatology
    • #Health
    • #Medicine
  • 3 days ago
  • 4
  • Comments
  • Permalink
Share

Short URL

TwitterFacebookPinterestGoogle+
Come chat with me TOMORROW at 10am EST about self Esteem and Autoimmune Arthritis. Whether you have Lupus or IBD-related arthritis, let’s talk all things self love, self care, self esteem with disease, disability, scars, prednisone side effects, etc.
Come connect with other patients, share resources, ideas, and chat about a sensitive topic in a safe space!
Pop-upView Separately

Come chat with me TOMORROW at 10am EST about self Esteem and Autoimmune Arthritis. Whether you have Lupus or IBD-related arthritis, let’s talk all things self love, self care, self esteem with disease, disability, scars, prednisone side effects, etc.

Come connect with other patients, share resources, ideas, and chat about a sensitive topic in a safe space!

    • #the amount of typos in this thing annoys me so much
    • #Chronic illness
    • #Chronic pain
    • #Autoimmune
    • #WAAD
    • #Rheumatology
    • #Medicine
    • #Health
    • #Arthritis
    • #RA
    • #JRA
    • #JIA
    • #sJIA
    • #JA
    • #Reactive Arthritis
    • #Rheumatoid Arthritis
    • #Lupus
    • #SLE
    • #Still's Disease
    • #MCTD
    • #UCTD
    • #Sjogren's syndrome
    • #Ankylosing Spondylitis
    • #Live chat
    • #Disability
    • #Autoinflammatory
    • #Dermatomyositis
  • 4 days ago
  • 11
  • Comments
  • Permalink
Share

Short URL

TwitterFacebookPinterestGoogle+

Tumblr Tuesday Messages!

I had to take the week to chill out after some family stuff, and I came back to so many messages from people who found me through Tumblr Tuesday and hundreds of new followers.

You guys are awesome. I love getting to know who reads Chronic Curve and a little about why you do, so if you haven’t already, feel free to drop me a message and introduce yourself! 

Major kudos to those of you who also sent me jokes. Tumblr is the greatest.

My inbox has over 370 messages (oops)— the goal for this summer is to answer every single one of them. I’ve read them all, I promise, and responses are coming!

Chroniccurve.com is still undergoing a facelift, so bear with any changes and a lack of proper navigation for a little while.

    • #Tumblr Tuesday
    • #Chronic illness
    • #Chronic pain
    • #Autoimmune
    • #Health
    • #Medicine
  • 5 days ago
  • 8
  • Comments
  • Permalink
Share

Short URL

TwitterFacebookPinterestGoogle+

New Biologic Approved by the FDA for sJIA, Still's Disease!

A biologic called Ilaris, an Interleukin-1 (IL-1) beta inhibitor, has been approved for Systemic Juvenile Arthritis, Still’s Disease. Ilaris is already approved to treat other similar autoinflammatory diseases, such as CAPS (cryopyrin-associated period syndromes).

For those of us whose diseases best respond to IL-1 drugs (Kineret), it’s great to have another option on the market for us now and hopefully will make it easier for insurance to cover the medication (no more off-label use). A good day for JIA!

Click to read more.

    • #Autoimmune
    • #Medicine
    • #Health
    • #Rheumatology
    • #sJIA
    • #JIA
    • #JRA
    • #Rheumatoid Arthritis
    • #RA
    • #Still's Disease
    • #Arthritis
    • #Autoimmune Arthritis
    • #Biologics
    • #Ilaris
    • #IL-1
    • #Chronic illness
    • #Chronic pain
    • #Juvenile arthritis
    • #Juvenile idiopathic arthritis
    • #Systemic juvenile idiopathic arthritis
  • 1 week ago
  • 12
  • Comments
  • Permalink
Share

Short URL

TwitterFacebookPinterestGoogle+
Come chat with me on May 19th-20th for World Autoimmune Arthritis Day! We’re talking all things self esteem, self perception, and self love with Autoimmune Arthritis and chronic pain. From Prednisone weight gain to lose of purpose and identity, let’s chat.
Pop-upView Separately

Come chat with me on May 19th-20th for World Autoimmune Arthritis Day!

We’re talking all things self esteem, self perception, and self love with Autoimmune Arthritis and chronic pain. From Prednisone weight gain to lose of purpose and identity, let’s chat.

    • #chronic illness
    • #chronic pain
    • #autoimmune
    • #Arthritis
    • #Autoimmune Arthritis
    • #Lupus
    • #SLE
    • #RA
    • #JRA
    • #JIA
    • #Still's Disease
    • #Rheumatoid Arthritis
    • #MCTD
    • #UCTD
    • #Dermatomyositis
    • #Ankylosing Spondylitis
    • #Psoriatic arthritis
    • #IBD
    • #Reactive arthritis
    • #WAAD
    • #Advocacy event
    • #Sjogren's Syndrome
    • #Sjogren's
  • 1 week ago
  • 6
  • Comments
  • Permalink
Share

Short URL

TwitterFacebookPinterestGoogle+
Page 1 of 50
← Newer • Older →

Portrait/Logo

Avatar A 21 year old student and ePatient advocate working to help others navigate through life with chronic pain, chronic disease, and disability. Sharing resources, advice, helping others find a voice and become empowered patient advocates. Raising awareness for Autoimmune Arthritis and Autoinflamatory diseases.

Read more about Chronic Curve here.

Like the facebook for giveaways, updates and more before it hits tumblr


Pages

  • About Me
  • Site Index
  • FAQ
  • Disclaimer
  • Resources
  • Buy a Bracelet!
  • College & Chronic Illness
  • Shop

Follow Me On:

  • @@chroniccurve on Twitter
  • Facebook Profile
  • chroniccurve on Youtube

Instagram

loading photos…

  • RSS
  • Random
  • Archive
  • Ask
  • Mobile
Effector Theme by Pixel Union