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Chronic Illness Problems 06/19/2012

     


  • 7 am blood tests. What part of “time sensitive” don’t they understand? I made an appointment. How is it that at 7:10, when I’m one of two people in the room and the lab has been open only for 10 minutes, you are already an hour behind? Cortisol testing is nothing new and I’m without food or pain medication (and therefore very uncomfortable and unhappy), so let’s try to not move at a snail’s pace. Please and thank you. Now, take my damn blood. 
     
  • Yes, the tourniquet band around my arm hurts. Yes, I am aware I am very sensitive. Yes, I am also aware my arms are bright pink. If I wasn’t sensitive and bright pink, I wouldn’t need to have my SED rate, CRP, ANA, Rheumatoid Factor (Rf), etc checked every few weeks. You wouldn’t know me by name, and I wouldn’t be sitting here without a bra in public without makeup. I know you mean well, but please stop pointing out my physical state of being and just take my damn blood.
     
  • Shitty waiting room chairs. What are you people thinking? Seriously. Plastic stools with a layer of styrafoam-type “cushioning” do not work in a rheumatology clinic or lab, or really anywhere there are people with chronic pain  coming to see a health care worker. You’re screwed if you have swollen anything, have bad hips, need something soft to rest your swollen arms on, or need any kind of cushioning. Seriously, whoever puts together the waiting rooms needs a lesson in accessibility and chronic conditions (particularly if we’re talking about a rheumatology clinic).

One last thing: Why do people think that being rude will get them what they want faster? Kindness begets kindness, and the same goes for rudeness. If you’re rude to me for absolutely no reason whatsoever, I’ll make sure to be extra kind and not only thank you for your help, but I’ll also wish you a lovely afternoon on my way out (and I’ll make sure to give you a huge smile).I will do so while wondering why you went into health care at all.

Here’s your challenge for today, readers: Smile at someone today. Smile at someone that looks sad. Smile at someone that looks angry. Smile at someone that smiles at you! But smile at people who give you the dirtiest of looks, too. Kill ‘em with kindness. The world needs more of it.

    • #in which Emily is seriously irritated and seriously in pan
    • #Pain
    • #Not pan
    • #I am not in a pan
    • #Chronic illness
    • #Chronic pain
    • #Chronic illness problems
    • #Blood test
    • #Cortisol
    • #RA
    • #Rheumatoid Arthritis
    • #JRA
    • #JIA
    • #Still's Disease
    • #Lupus
    • #SLE
    • #Autoimmune
    • #Invisible illness
    • #Kindness
    • #Challenge
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11 Notes/ Hide

  1. heartofcathedrals likes this
  2. hold-on-pain-ends16 reblogged this from chronic-illness-support
  3. chronic-illness-support reblogged this from chroniccurve
  4. repetition-is-holy likes this
  5. daleksdontcry likes this
  6. taletreader likes this
  7. avaslittlesecret likes this
  8. instructions-are-included likes this
  9. katisconfused said: I also like how like every doctor office I have only has a few hours a day they are not an answering service. What are the chances with my painfucked sleep I will be properly coherent to talk to them :/
  10. uctdgirl likes this
  11. chroniccurve posted this

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Avatar A 21 year old student and ePatient advocate working to help others navigate through life with chronic pain, chronic disease, and disability. Sharing resources, advice, helping others find a voice and become empowered patient advocates. Raising awareness for Autoimmune Arthritis and Autoinflamatory diseases.

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