August 2012
23 posts
8 tags
SOS: Stop Comparing and Send Sustenance, a Rant:
Please, continue telling me all about how your lack of sleep equates to my inability to get out of bed because my spleen is screaming, my muscles are weak and on fire, my joints keep (painfully) getting stuck in their position every few minutes or so, fever and fatigue are kicking my ass despite having both a muscle relaxer and pain medicine in my system. Please, keep talking while I lie here in...
6 tags
rinncake asked: I hope this doesn't sound too geeky and cliche, but your blog has almost completely changed the way I view my own chronic illnesses; it's made me feel so empowered and unashamed to be vocal about my illness and my needs. As a high school senior applying to colleges soon, I also cannot thank you enough for your pages on College & Chronic Illness!! Please know that your blog is making...
15 tags
Tell me I can't and I'll prove you wrong. Prohibit...
I think more chronically ill and disabled students need to hear this. Today I was told that there is no major for me at this time. Which is absolute insanity, but more on that later.
I was laughed at when I mentioned that my gpa goal for this year is a 3.68.
If they think I’m going to accept being told to “go to community college” and give up another career path because...
19 tags
New Chapter: Giving up Traditional Medicine
Officially ending my academic road to med school today. I’m about to leave to go sign the official forms to change my major. Sucks, because I know a year ago I was healthy enough to keep going. Sucks, because I know I have the brains and the drive to get there if it weren’t for the medical issues. Sucks, because right now I would have been finished with my minor in chemistry and...
30 tags
National Invisible Chronic Illness Awareness Week...
National Invisible Chronic Illness Week is here! It’s time to spread the word and participate in this event.
I’ll be blogging each day with a different topic relevant to invisible illness and what you can do you make positive changes to help others with these diseases in our society.
It’s time to put a spotlight on our invisible illnesses. No more hiding.
I’ll be...
21 tags
15 tags
In other news:
I went from having four really awesome roommates to having a very empty and very lonely 4b/4br apartment to myself in less than 24 hours. Nothing personal, but a huge management screw up.
On the plus side, I have autoimmune arthritis-proofed my space and will do a tutorial video for those of you interested in making your apartments more accessible and easier on your bodies.
Okay then.
1 tag
Anonymous asked: I'm so sorry that you are in rough shape. It must be stressful with the new school year coming up. I really hope you can find some relief soon and are able to get some downtime before classes to center and calm yourself.
22 tags
Chronic Curve is Taking Some Time Off
I had a difficult summer. My symptoms worsened, new ones popped up, and my general state of being just took a decline. Disorientation and cognitive difficulies have interfered with my daily life more this summer than ever before. I’ve had to up my pain medication; in April I was taking pain medication once a day and occasionally I could go without prescription pain medication. Now, I am...
20 tags
30 tags
College and Chronic Illness: Your First Two Weeks...
The first few weeks on campus with a new chronic illness (or new school) can be seriously daunting. It’s hard to keep track of all the new places, people, and rules, so here’s a quick cheat sheet to your first few weeks on campus and the most important things to accomplish:
Week 1 Priorities:
Get to know your surroundings.If you have a car, use it and drive around the campus. Take...
19 tags
Update: Moving Hiatus, Quick Recap
I’m moving back to school again into a new apartment tomorrow, so I’ll be out of contact likely until Monday or so. Anticipate a delay in responses/posts.
A quick recap of the past two weeks: I’m losing significant amounts of hair again, my spleen is freaking out, I had an ultrasound of my liver that I assume was normal since I didn’t hear back with results, acne hell is...
19 tags
Chronic Illness Problems 08/14/2012: Moving
The problem with moving when dealing with chronic illness: aside from the fact that your spleen is pissed off and your very adorable puppy refuses to get out of your suitcase once she realizes you’re leaving— is that once you adjust yourself in a sitting position on the tile floor to pack, youcan’t get back up.
This would be considered a chronic illness fail.
Anonymous asked: “Sometimes you climb out of bed in the morning and you think, I'm not going to make it, but you laugh inside — remembering all the times you've felt that way.”― Charles Bukowski
30 tags
Remicade/Prednisone Acne: Yes, It IS the...
I just got back from an appointment with my dermatologist. I’ve been seeing him for a year on and off and he is one of those physicians that regardless of their specialty, they look at the entire picture— something important for a patient with autoimmune, endocrine, and possibly genetic issues.
He walks in (I haven’t see him since last August) and rather than saying hello, he...
notintolabels asked: TAG A BEAUTIFUL PERSON! YOU’RE IT! Rules are: copy this message to 10 other beautiful people/blogs who you think deserve this message! Keep the game going and make everyone feel beautiful ♥
17 tags
zoec123 asked: Hi! I have a quick question- I can't drink because of meds and my friends are all BIG drinkers. If I go to the pub with them or to a house party they still try and encourage me to drink, and friends of friends who don't know my situation do as well. I was wondering how other people cope with this? Saying "I don't drink" tends to trigger a lot of questions and I'd...
12 tags
corretto asked: Your blog is a lifesaver, and your posts on Chronic Illness and College are so helpful for me, especially this year while I cope with my second year at Uni and my first with Fibromyalgia and Interstitial Cystitis. Thanks so much!
The backlog of messages in my inbox is just insane
so for the next hour I’ll be answering q’s from the past two months (sorry!) and catching up on responses. You have been warned!
21 tags
Anonymous asked: How do you handle the cost of so many health issues? Do you have in surance?
9 tags
highlordmhoram asked: After maybe ten or fifteen minutes of browsing this Tumblr page I find I have much respect for you, both for what you have endured and for what you are doing with this page. There's something very encouraging about knowing there are other people out there fighting chronic illness and chronic pain problems. Thank you.
16 tags
Lacking All Motivation, Share Some of Yours?
Feeling discouraged today.
If there’s no unhealthy food in the house, I won’t eat it. Simple as that. Sticking to a clean diet is easy when it’s what’s already made, prepped, and there’s no crap to inhale. And then bagels were brought over today. Seriously!? You people know that bagels are my weakness and my favourite (counting the days until I’m back in my...
16 tags
Update: Remicade, Cystic Acne, Enlarged Spleen,...
9-2 infusion went smoothly. Increased dosage of Remicade; no prednisone since it was making me more miserable and not doing enough for me anyway. Was in quite a bit of pain, BP was weird today, but got in a few hours of sleep thanks to the Benadryl— always a positive.
Broke out with more cystic acne after the infusion despite no steroids. After doing some research, there have been...
