If you know a child/young adult with JRA/RA who is struggling, refer their parents or friends (or them) to this: Jeffrey Gottfurcht Children’s Arthritis Foundation— a foundation that grants wishes/dreams (like Make A Wish) to children and teens ages 4-20 who struggle with autoimmune arthritis and deserve to smile a little brighter. Or donate to the foundation in their name :)
Rheumatologist appointments are always a nerve-wracking experience for me. It seems that between each appointment I develop absurd amounts of new symptoms I had no idea were related to my autoimmune diseases. I am constantly holding my breath wondering if today is going to be a good rheumy day or a day of poor blood results and bad news— a bad rheumy day. Today was one of those bad days…
Chronicillnesscat.tumblr.com — Next to my percocet, the humor I find in this site is the best medicine to dull some pain. Being able to laugh at myself makes these diseases a little easier. Have a laugh, check out chronic illness cat!
RaWarrior — everything you ever wanted to know about rheumatoid arthritis and chronic illness. This woman’s website is absolutely wonderful- a great resource for both families and those who are sick.
ButYouDontLookSick — A website designed for those with chronic illness. Excellent forums with specific threads for tons of different illnesses, from chronic migraines to Lymes, Lupus to the undiagnosed. created by the author of the Spoon Theory, this website was my go-to for questions, advice, and resources to give to my friends and family.
Chronicallyscrewed.tumblr.com — a young woman my own age suffering from ME/CFS. She has a great way with words in describing her journey that I can relate to when I can’t seem to find the words (or the ability to write them, thank you brain fog) myself. I have followed her from the very beginning and her story resonates deeply with me. She is one of very few people that I am able to have contact with that is my age experiencing very similar symptoms.
Dr. Cranquis is a real life urgent care physician who takes time out of his busy schedule to provide tales of his daily experiences as a physician, ins and outs of medical school, various articles, as well as help people through his ask box with various concerns and questions. Dr. Cranquis won’t cease to make you laugh and there is always something new to learn by reading his stories! A very big thank you to Dr. Cranquis, as he was the person that inspired me to start blogging about my illnesses and reach out to others.
*if I post your link in a link roundup and you would like me to remove it, please send me a message so I can do so.
Awareness Bracelets for Rheumatoid Arthritis: Where Are They?!
I have one for Scoliosis, now I want one for Rheumatoid Arthritis. Problem is, I can’t seem to find any purple and blue silicone awareness bracelets for RA. Though it is my goal to order custom blue and purple bands for RA, I went hunting and found some alternatives for the time being. I will add to this as I find more:
1. International Autoimmune Arthritis Movement: “The only official silicone Awareness Bracelet that represents the fight to bring understanding to Autoimmune Arthritis diseases…” $1.50 each and 100% of proceeds go directly to the foundation. You can order them directly from their website here: http://www.iaamovement.org/
2. Arthritis Foundation “Kids Get Arthritis Too” awareness bracelets— “Sold in packs of 5 or packs of 50 for fundraising. Sixty-five cents per band / $3.75 per 5 pack benefits the Arthritis Foundation when purchased at the Individual Supporter prices.” You can order them here.
3. Let’s Move Together— Arthritis Foundation— Let’s Move Together is an organization run by the Arthritis Foundation to empower and encourage arthritis sufferers to stay active and participate in Arthritis Walks to raise money for a cure. Like the bracelet listed above, the bracelets are $.065/band or $3.75/five bands and proceeds benefit the Arthritis Foundation. You can order them here.
4. A product of Rest Ministries and Hope Keepers— white stands for Invisible Illness awareness. You can order this band here.
5. National Scoliosis Foundation- Scoli Band"The Scoli~Band is[…]designed to show unity among scoliosis patients, health care providers, and supporters worldwide…" Scoli-Bands are $3.00 each and can be purchased here: http://www.scoliosis.org/store/scoliband.php
6. Band Together For Lupus —Cure4Lupus.org. These bands are 2.99 and the site has 25 different awareness bracelets for Lupus! You can purchase them here by phone or online.
Invisible Disabilities Association Awareness Bracelet: Invisible No More. These glow in the dark silicone bracelets support IDA and ringing our invisible illnesses to light. Literally. (My inner five year old is excited about the glow in the dark obviously) Bracelets can be ordered in a 2-pack, 5-pack or 25-pack. Ordering and pricing information can found here.
Whether you suffer from a chronic/invisible disease or are a friend/family member of someone who does— buy a bracelet, wear a t-shirt, buy a bumper sticker— something to spread knowledge. Autoimmune arthritis is so widely misunderstood, chronic illness and invisible illness is widely misunderstood. Little things like wearing a bracelet bring us a step closer to banishing the misconceptions. Show your support.